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People with terrifying brain disorder can’t ‘speak or write the letter Q’, live in fear as the document probes the illness

A MYSTERIOUS brain disorder has terrified victims of being unable to “talk, walk, or write the letter Q” as doctors probe the condition.

For more than two years, the disease has plagued people in the Canadian province of New Brunswick, causing a range of neurological symptoms.

A mysterious brain disorder has terrified victims like Terriline Porelle with her ability to 'go or speak'

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A mysterious brain disorder has terrified victims like Terriline Porelle with her ability to ‘go or speak’Credit: Facebook
Johanne Boucher got sick last spring, and she gradually lost her ability to speak late last year

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Johanne Boucher got sick last spring, and she gradually lost her ability to speak late last yearCredit: Facebook
In 2019, Gabrielle Cormier started suffering from muscle pain, difficulty concentrating and vision problems

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In 2019, Gabrielle Cormier started suffering from muscle pain, difficulty concentrating and vision problemsCredit: Facebook

Symptoms listed by health officials include memory problems, muscle spasms, balance problems, difficulty walking or falling, hallucinations, unexplained weight loss, and pain in the abdomen. the limbs.

Doctors are still confused by this disease and have not found a cause.

Health officials are confused as to why such a large number of young people are affected by the disease.

Victims and their families have described their horrifying stories of the disease and how their bodies and minds slowly fell apart.

In 2019, 20-year-old Gabrielle Cormier, an aspiring medical student, started suffering from muscle pain, difficulty concentrating and vision problems.

Her family initially suspected it was sports fatigue; however, soon after, the 20-year-old girl was unable to keep her balance.

Cormier is now only able to walk with a cane, has difficulty speaking, and cannot concentrate enough to attend classes at university.

“It broke our hearts. Young people should go out and enjoy themselves. Instead, they’re dealing with health problems that we can’t explain,” says Cormier’s stepmother, Stacie Quigley Cormier. Guardians.

“Politics is slowing things down. And what people don’t have is time.”

The disease is similar to Creutzfeldt-Jakob disease (CJD), a rare and fatal brain disease, a form of what is known as “Mad Cow Disease.”

A whistleblower said the condition is alarming doctors, two years after it was first discovered in spring 2019.

“I am really concerned about these cases because they seem to progress so quickly. I worry for them, and we owe them some explanation,” the source told The Guardian.

Goverment called it a “cluster of neurological syndromes of unknown cause” and was first identified 48 suspected cases Spring before.

However, medical sources say the number is closer to 150, with many of them suffering from pain in their 20s and 30s.

‘ALL I CAN DO IS WRITE’

Johanne Boucher was one of the original 48 victims, explaining her loss of speech in late 2021.

“I was in shock. I couldn’t even order a coffee. All I could do was write. After almost four years, I’ve seen two neurologists… and had countless exams. . I don’t know what I have. The disease is still unknown,” she told the Guardian on Facebook Messenger.

In the summer of 2020, 33-year-old Terriline Porelle felt a sharp, “electric shock” pain in her leg.

Porelle, an avid hiker, noticed that days later, the sensation moved throughout her body, reaching her arms and face, and like Cormier, her eyesight worsened.

Now, Gabrielle Cormier can only walk with a cane and has difficulty speaking

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Now, Gabrielle Cormier can only walk with a cane and has difficulty speakingCredit: Facebook
Terriline Porelle said the illness started in the summer of 2020 when she felt a sharp 'electric shock' pain in her leg

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Terriline Porelle said the illness started in the summer of 2020 when she felt a sharp ‘electric shock’ pain in her legCredit: Facebook

An optometrist told her the muscles in her eyes functioned similarly to those of patients in their 70s and 80s.

After forgetting how to write the letter Q, she went to see her GP, but to no avail. A neurologist ruled out other possible conditions and her brain scans came out clean.

“I was relieved that it wasn’t a tumor or something. But we still don’t know what it is. I try not to obsess over it,” said Porelle, who has trouble moving around the house.

“I have sleepless nights where I wonder how this happened. What’s going on with me? ”

‘How Long Will I Live?’

Porelle, who lives in a rural community, said her mental health continued to deteriorate.

The 33-year-old said she could hardly complete her daily tasks without the help of her partner.

“I do not know what to do. I try to stay positive, but it’s hard. There are days when I don’t know if I should save for retirement. Will I even live that long? “

Experts say the disease may be related to environmental triggers, with particular interest in beta-Methylamino-L-alanine (BMAA).

BMAA is a toxin that is concentrated in marine and freshwater environments and has been linked to diseases such as Alzheimer’s and Parkinson’s.

A report published in October said that a survey of 34 people with the disease did not find “no specific behavior, or exposure to food or environment” that caused the illness.

The mysterious disease strikes people of all genders and all ages, with the average age of the patient being 59 but the young being 18.

Alier Marrero, a New Brunswick neurologist who has treated most of the patients, previously said he has found “unusually young patients” presenting symptoms as early as five years. two thousand and thirteen.

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https://www.thesun.co.uk/health/17552184/mysterious-brain-disorder-stumps-canadian-doctors/ People with terrifying brain disorder can’t ‘speak or write the letter Q’, live in fear as the document probes the illness

Emma Bowman

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