PROGERIA is a rare medical condition that affects children and is commonly known as Benjamin Button’s disease.
This condition is extremely rare with less than 1,000 cases reported each year.
What is Progeria?
Progeria Hutchinson-Gilford syndrome, also known as Progeria or HGPS, is a rare and fatal genetic condition.
This disease is known to cause Children age quickly, causing a shorter lifespan.
Children who are diagnosed usually have an average life expectancy of about 13 years.
Another type of Progeria is Werner syndrome, also known as “adult progeria,” this doesn’t manifest itself until the late teen years, and leaves those diagnosed with a life expectancy in their 40s and 50s.
Worldwide, 1 in 4 million babies is born with this condition.
What Causes Progeria and What Are the Symptoms?
Progeria is caused by mutations in the lamin A (LMNA) gene.
The most common symptoms of Progeria include:
- Growth slows down
- Visible veins
- Narrow face or small lower jaw
- The head is disproportionate to the face
- Hair loss
- Thin or wrinkled skin
Progeria’s organization “Children with Progeria begin to show many features of accelerated aging within the first two years of life.
“Signs of Progeria include impaired growth, loss of body fat and hair, aging skin, stiffness, hip dislocation, generalized atherosclerosis, cardiovascular disease and stroke.
“The children are very similar in appearance, despite having different ethnic backgrounds. Children with Progeria die of atherosclerosis (heart disease) at an average age of 14 years.
Despite their physical complications, they are thought to retain all of their mental abilities unlike some elderly people, who may develop dementia and related illnesses. important as they get older.
Progeria does not affect the reproductive organs, and there have been cases of women with the condition giving birth to healthy babies.
Is there any cure?
At this time, there is no cure for Progeria.
Although there is no cure for the condition itself, there are treatments for associated complications, such as coronary bypass surgery.
Children will also often receive occupational therapy and physical therapy to help.
Who is YouTuber Adalia Rose?
Born on December 10, 2006, Adalia Rose is a famous social media star from Texas, who lives with her mother Natalia, stepfather Ryan, and three younger brothers.
As a baby, she was also diagnosed with Progeria.
Adalia is already popular with her YouTube channel where she often posts videos about her life as well as makeup and cooking tutorials with her family.
Over the years, she was able to gain more than 2.91 million subscribers.
It was announced on January 13, 2022, that she had passed away at the age of 15.
In a Facebook post, the family wrote: “January 12, 2022, at 7pm, Adalia Rose Williams was set free from this world. She entered it quietly and passed away peacefully. quietly, but her life is far away.
“She has touched MILLIONS of people and left the biggest mark on the hearts of everyone who knew her.
“I really wish this wasn’t our reality but unfortunately it did. We want to thank everyone who has loved and supported her.
“Thank you to all of her doctors and nurses who have worked for YEARS to keep her healthy. The family now asks to mourn this great loss privately.”
https://www.thesun.co.uk/health/7192151/what-progeria-causes-symptoms-treatment/ What is Progeria? Causes, symptoms and treatment of the condition